Zane’s Matching Fundraiser has three weeks to go
A couple of week ago, something incredible happened: an anonymous donor stepped up to help improve Zane’s world with a 30-day, dollar-for-dollar match campaign to raise $10,000.
This donor will match every donation, up to $500, but if we’re going to raise $5000, we’re going to need your help.
Here’s what you can do:
Each and every donation of any amount is greatly appreciated and will be matched dollar for dollar.
You can “Join” on the righthand side of the fundraising page, a duplicate fundraising page will be created for you with your own unique URL and you can use to send to your personal contacts. Set a goal for yourself and encourage others to give if they can.
Often people think that money is the only way to help, but that’s not the case. We ask you to please share Zane’s story through email, social media, and in person on your mobile device. Your share could mean more supporters for Zane.
Please read Zane’s story below and help us improve his world:
Five years ago our son, Zane, nearly died. He had a four-hour seizure that left him forever changed. Zane has a type of epilepsy that is resistant to medication called drug-resistant temporal lobe epilepsy. Before his surgery, he was having abnormal epileptic spikes on average of every 20 seconds. The diagnosis was that with the way things were headed, he was unlikely be able to speak or care for himself by the time he was an adult. With a goal of ridding him of these debilitating seizures, he had brain surgery over two years ago. Doctors estimated that there was an 80% chance Zane would be completely cured.
Unfortunately, two months after the surgery, Zane had another massive seizure. Tests showed that the seizure activity had moved to the other side of his brain. This is rare. We were devastated. That initial seizure left Zane with brain damage at the tender age of two- years old. Since then, he has been diagnosed with drug-resistant epilepsy, autism and sensory processing disorder. The sensory processing disorder makes it difficult to go out to events with lots of noise, light or people.
But things did get better after the surgery. For the past two years Zane has had far fewer seizures, his behavior improved dramatically, and he was doing great in school. Maybe things would be OK. Our smiles grew bigger.
This past spring, Zane started having headaches - cluster headaches that would go on for days and migraines that were incapacitating. This fall, things got much worse with him having more seizure activity and more autistic-like symptoms. He often asks, “Am I going to die?”
Zane’s condition can make him aggressive. However, Zane is also one of the most affectionate, beautiful people you could ever meet, making for a strange dichotomy. He gives the best hugs. He gives his brother, Gavin and us, multiple kisses each day.
Zane has an MRI and overnight EEG scheduled at the Denver Children’s Hospital in February, 2013. That is the soonest they can get us in and it feels like an eternity to wait. We are hoping to know more after those tests are run.
There are ways that you can help.
First and foremost, keep us in your heart. Think good thoughts for us. If you pray, keep us in your prayers. When Zane got sick before, we felt people’s love holding us up, holding us together. At times it felt like that love was the only thing that got us through. We could also use extra help for Zane’s care and travel expenses.
Lastly, thank you. Thank you for your kindness and support. This process has taught us to reach out and ask for help, and to accept it as the gift it is, when given. Many people have told us how lucky Zane is to have us as his parents. We count ourselves lucky to have him and his brother as sons and to have the love and support of our family, our friends and our incredible community, both near and far. We know that there are many challenging days ahead. But Zane also reminds us that our lives, though fragile, are also a blessing.
With love and gratitude, Elaine & John
To donate to the matching donation campaign, visit: https://www.fundraise.com/zanematch